Breakout Group 4/27/21

Bryce Anderson, Daniella colon-cosme, Haley Schnitzer, Lanie Taylor ( Scribe) 

Haley: The list relates to the characters we saw throughout the book with many of the characters being neuroqueer. 

Bryce: I think in terms it’s like…Aster at some points we get a glimpse of what she feels in terms of her psychological state and how her personality bucks interactions with others and identifying self-consciousness with how she interacts with others. Mentions the end of part 3, and she didn’t want to say the wrong thing and ruin the mood. It carries out throughout the book, and things that most people do not think about, and how she has to make an effort to interact in the way that neurotypical people would interact. 

Lanie: Agrees,  Aster likes to mimic and to make sure she thinks about what she says to avoid angering others. 

Bryce: Giselle and Aster played house, but kissing Theo made her feel different. It’s sort of like she doesn’t know how to move around Theo, or interact in the ‘right’ she becomes hyper-aware of her actions. 

Talks about the sex scene between Aster and Theo and how it affected Aster. She was out of her comfort zone and Theo helped make her feel welcome and comfortable

Bryce: Talks about the racial differences and how it affects how they are seen. Lowerdeckers being seen as not desirable, which Theo counteracts with being attracted to Aster and seeing her as beautiful. They value each other in an emotional way and that’s even a sort of transformative experience for Aster because she is able to connect with someone on a different level. 

Bryce: The note was sweet and creepy. 

Lanie: we have to stan Theo for his asking for consent, 

Bryce: Aster had to give a physical maker and say yes, for that consent. 

Breakout room 2 

Haley: What did you think about the ending?

Bryce: Bittersweet. But at what cost? For freedom for freedom’s sake to just get off. But there was loss with it and that is always sad. 

Lanie: Its

Daniella: It’s bittersweet that she was able to get off the ship, but at what cost

Bryce: It feels like, as a message goes, she has the choice, freedom that exists, but at what cost. Is it worth it to live on the planet where you are the only one, maybe there are other people on that earth. Survival is key. They must have left for a reason. Read a scene where Aster wanted to bring Giselle back to life, how it relates back to Aster’s ability to grow plants. Their relationship is almost a foil, Aster has a consequence for being neurodivergent, Giselle has her own disability, but she lives on the outside able to express herself. She was almost a balance to Aster, even though there were differences, she showed Aster how to be ‘normal’ in a way. 

Lanie: Agrees, Giselle is loud and expressive, Aster is drawn in within herself, and quiet. 

Bryce: Giselle ran around Matilda, through the vents and finding where Asters mother was. The fact that aster said that she was sad to find her mother’s skeleton, but it was harder with Giselle, and now she has to bury her sister on an empty planet. 

Foss: The amount of time on the ship has been 300 years, but on earth, it has been about 1,000 years. 

Haley: Confused behind the motivation behind the people being on the ship and why they were seeking out a new planet. 

Daniella: Like the ending and how it was up to interpretation 

 Breakout room 3

Lanie: It read a lot like how the others did

Haley: Did think it was interesting that it brought up the first known piece of literature from an autistic author. that this text is contrasting what everyone else’s piece worked on

Bryce: it was interesting in the way it went about reassigning meaning to the text, talks about the part that autists and their category of specific behavior that would be classified as not neurotypical. There was a need to classify everything. he thinks that separation would not be accomplishable. 

Lanie: Talks about how classifying people based on different diagnoses and part dehumanizes them

Haley: Talks about ejaculation and how it is interesting. How people oversexualized autistic people, and how it makes it inappropriate. 

Bryce: How do you redefine that, it can be used, but there are better words that could accurately describe the abrupt utterances of an autistic person. There is a sort of negative framing that is inherent in the definition of the world that harkens back to old categorizing, or old discoveries in the field of autism. 

Bryce: Tells foss about wanting to separate the original meaning of the definitions and to take it away from that negative connotation. That categorizing is a pathological activity, whereas any other behavior is seen as normal and does not need logging. Trying to define it, feels like trying to define a single ‘normal’ person.

Breakout group: Brianna Fridriksson, Faith Hopkins, David Claeson, Lanie Taylor(Scribe)

Faith: it was a hard piece to read, but it was a good piece because it gave a bunch of background, such as court cases, and what actually happened. Other pieces have given us opinions, but this gives us actual facts and discrimination. It tied it together for me and helped me see why it is such an important topic. 

Lanie(Scribe): brings up how autistic individuals are viewed on how they affect neurotypicals

Brianna: I thought that it was interesting how there is a concept of dividing neurodiverse and neurotypical. They always think that it just ‘happens’ and wanting to fix whatever is going on. Classes, school, medication, etc. Connects that to her high school and how seniors had to have volunteer and she volunteered at a special class at an elementary school. She got to see firsthand how some parents reacted/interacted with their children. How parents are the biggest part of how disabled the child feels. 

David: parents support how they treat their child. It is the most important factor. 

Brianna: Agrees that it is very important. She talked about a little boy how his parent did not want to deal with her child. The parent was completely dismissive of the child’s disability and it affected the child in his confidence in his learning. It does fall onto the parent. 

Faith: agrees with the parent being a big depending factor.

Lanie(scribe): Talked about my cousin and how his parents treated him the same as their other children and that it helped him have a sense of normalcy rather than being treated based on his disability. 

Brianna: relates back to her experience at the preschool

Faith: talks about her mom and how she works with an autistic nonverbal child and how she wanted to include the child. 

Pt: 2

Lanie(scribe): People with any sort of illness is blamed on demonic possession

Faith: Talks about how Frankenstein’s monster is a bad representation of autism because it demonizes autism. 

Breakout Room Discussion 4/15

Bryce, Alaina, Lily, Faith, Nathalie

Focusing on Ashkenazy

Alania- I did enjoy the beginning where she was talking about how her skin color allowed her to blend into different cultures which is not something that a lot of people are able to do.

Bryce- Yeah, she’s multi-racial so she has many features that allows her to blend in wherever she goes. Sor of being how she mentioned that that is when she feels the most accepted or welcomed into a group. She can just walk in anywhere and people would assume that that is where she is supposed to be. On the flipside of that being autistic there is a bit of a barrier for her. There’s a sort of dichogamy between the two

Alania- With autism and other disabilities you are immediately others but with being multicultural she is both and insider and an outsider

Bryce- I thought that the part where she was talking about the microaggressions where she mentioned – people would look at her and say why are you doing that and that makes it difficult but not really which is sort of pervasive or it spans into her disability. When people say “oh I have this” they use that and all their preconceived notions about it and say this is how you’re supposed to be this

Faith- Yeah, I really liked that part. I hate stereotypes that people may have toward others. I dislike that so much and it definitely doesn’t help that the media 

It gets me confused when people claim to have something, and they get it from just one trait from the disorder

Alania- It’s like people take the simplest things from stereotypes to feel validated.

Bryce- It almost waters down peoples’ actually lived experiences. The people who actually have it aren’t being taken seriously since its lost its importance.

Faith- Yeah, I like that phrase since it represents the struggle-

Alania- One of the things that stood out to me is that people with autism and who are also people of color have to follow the strict roles that society has set out for them

Bryce- Yeah like in those communities having mental disabilities can be a source of shame for the person and for their family – I think she talked about how having to act a certain way and if your autistic and you’re not picking up on norms than you’re expected to pick up on the norms others pose you’re considered strange because you’re not understanding what people expect you to know

Alania- A lot of what gets me is that people who seek a diagnosis is not believed because they do not match the stereotypes – male dominated autism

Scribe: Nathalie L

breakout group 4/8/21

Faith, David, Lily, Karlie

Faith: what Yessie did was irresponsible but I think she handled that very well

Karlie: a lot of development that kind of flip flopped a bit. I fear what she did is gonna keep Jimmie from adopting her

David: I think the ending hinted that she did. My response is just anger. “Oh yes the death was tragic but a reasonable amount of deaths”

Kalie: “how many deaths are reasonable?” “however many we have” really?

David: complete dehumanisation . Also shocked Teddy died. 

Karlie: I knew something was going to go wrong, I was expecting it. 

Faith: It had to happen though, to trigger what Yessie did with the protest

Karlie: Worried for Yessie at first because of what the repercussions are, but then more people joined.

Faith: I liked how Access Now joined in.

Karlie: Mia started supporting herself which was really cool.

Faith: Yeah, and we found out she was abused by her mother

Karlie: Reading that upset me.

Foss: Do you think she is getting to a place where she can talk about it? Willing to confront her past? Silver-lining.

Karlie: she is developing a mature view on the world and at a young age, that’s disheartening 

David: One character Michelle had a weird ending, like no payoff?

Karlie: I liked her ending, she seemed one-dimensional at first. She became more human when she saw the wrong doings and quit

David: instead of empathy she had apathy.

Faith: I wanted her to do more about it, but I’m glad she quit and realized her job wasn’t helping people.

David: when she thought about reporting the conversation of the boss and then said “it doesn’t matter” that bothered me.

Karlie: What did you think of Jimmie adopting Yessie?

Faith: I liked how she saw her as an adult not her child, just roommates.

Karlie: Keeping the friendship alive

Faith: the way Teddy died didn’t sit well with me. Like shows disabled people can’t do things on their own after all.

Karlie: there was something wrong with the pipes too.

David: She could have checked it before leaving though.

New breakout room

Faith: the WHO defined disability and impairment as a disadvantage in the workplace and that irritates me because how are they supposed to get jobs if no one will advocate for them? They need work, too.

David: 79% of disbaled adults prefer to work but only 38% get to work. Even with the ideas of “no discrimination” in the workplace there is still a barrier for them.

Faith: it sucks that they are three times more likely to be below the poverty line

Karlie: a lot of things in that article annoyed me. Just goes to show that our society is not willing to work with disability

David: ableism is ignored and not dealt with upfront these numbers, aren’t presented often enough. The main thing that stuck out to me were the numbers. They are completely brand new to me. A severe lack of information to the public. 

Foss: A lot of these stats are viewed from the census. Especially hard for disabled people from ethnic backgrounds because they find themselves incarcerated school to prison pipeline

breakout group 2

Brianna, Faith, Arden, Lily

Arden: I hate Jerry.

Faith: My favorite has been Ricky; he gives off an in-between perspective where he isn’t sure how they should change but knows it’s wrong what he’s witnessing 

Lily: Joanne has been my favorite; she inputs and questions things that should change. The electric wheelchairs are not applicable to everyone. 

Arden: All the employees “it is what it is” and “we’re teaching them” but they aren’t, they are teaching them to be in an institution their whole life.

Arden: I really liked Jimmie. I like how she’s trying to be friends with Yessie and takes her out to the concert. So far a good person. 

Brianna: Joanne is my favorite because she appears to be the protagonist even though there’s multiple characters. I would like to see more from Yessie.

Arden: So far Michelle isn’t great. She says anything to get recruits even if it might not be the best for them (like Cherri’s case). 

Faith: I think it’s odd that Joanne is the only employee with a disability and can relate to their situation. Do you think jimmie was given a good character role because she is a lesbian and therefore can relate to their treatment (kinda)?

Brianna: kind of like the island of misfit toys when they can all be different but understand each other from the treatment they received

Arden: Do we know what Joanne was like before her disability? If she was not disabled, would she be fighting this hard for their rights?

Brianna: And that’s kinda the sad way to see it; people don’t care about certain things until it affects them somehow. She wouldn’t have been exposed at this level (childhood).

Arden: I’m glad she doesn’t have self-loathing on her disability. She doesn’t hate herself, it’s just a part of her life now.

Faith: she’s definitely a good role model; she has a job and now a relationship with Ricky.

Arden: Ricky is thankfully not sexualizing her disability, he clearly states he loves all of her.

Breakout Group

Lanie Taylor (Note taker), Karlie Jahn, Faith Hopkins, Arden Jones

Arden noticed a theme throughout the readings in how disability is sexualized
Faith: Talks about how people thought disabled people would be better off dead
Faith: Talks about the image from the stories, how the way we put in the narrative to support the healthiness of the main character with the disabled friend.
Arden: Disabled characters are there to uplift the nondisabled character
Faith: Disabled people are there to teach the main characters to enjoy life and that it is not fair because disabled people can enjoy life
Faith: disability as a prosthesis, used as a crutch to perceive normalcy.
Karlie: It is the idea of the main character having the cynical view and when seeing the disabled character, they have a positive change of heart
Arden: Feels that disabled people should be the ones to represent disability, but it could potentially damaging
Faith: Most shows and movies only focus on the struggle of the disability, not the positive aspects
Arden: says that disability is apart of someone, but it should not be the only thing that the show focuses on
Faith: Deaf people almost lost their way of communication by almost being banned from using sign language
Gay people were also considered to be disabled

Breakout Room 3/18 Sec. 2 Group 2

Karlie, Faith, Lily, Salem

Faith: P4,Barker +Murray, “Humanisim is means of ….uncodified certainties.” I like how they broke down what that actually meant.

Foss: Defined humanism. What did you all think about the burn-victims of Japan?
Faith: i think it was interesting that there was a specific name for them

Salem: what did the name translate to? Do you all think that giving a specific name to people who experience a particular tragedy, especially one that results in disability (?) like is that othering those people or like, sympathizing with their pain or both? where is the line between like, pity and sadness versus paying homage i guess

Faith: The name was radiation-effected people, I’m not really sure

Karlie: I read it more as like, a label of their medical condition because it’s such an exclusive condition

Salem: that makes sense, but like, at least in the US medical industry they’ve definitely used straight up slurs against people with disabilities as like, the formal nomenclature for their impairment or condition

Faith: it says “disability in postcolonial…as a generic disabling force.”

Salem: so basically, how it affects you as disability on a societal scale versus personal circumstance depends on the culture you come from and the environment you’re in

Faith: Different environments can make you more disabled than others, depending on your physical surroundings that immobilize you. You’re only as disabled as the society around you decides you are.

Breakout room 2 section 2 3/9

Arden Jones, Faith Hopkins, Lily Sportsman, Nathalie Luciano, Haley Schnitzer

A: Parents always worry about the future of people with disabilities. Had personal experience, it was positive, but some don’t have that environment. Several parts struck a nerve

F: It was hard to read how people treat people with disability

A: Gives them the thought that they need to fix it. “They’re suffering” instead just put up more ramps

N: People don’t really look at it like that, they just say “poor thing” and “how can they get out of the wheelchair?” and “a tragedy” But that’s not what people with disabilities are doing.

A: People focus on what people lack instead of what they have going for them. It’s part of their identity, but they are also more than their disability

F: “personal imagination” versus “cultural imagination” it’s exactly that, imagination. We shouldn’t be “imagining” we should be asking.

A: disabled people know what’s best for disabled people. How do you know how they’re feeling if you don’t ask them?

N: Abled persons projecting how they would feel if they were disabled. Abled bodied people don’t have to worry about ramps etc. When you are abled, it’s a nightmare to see yourself as disbaled which leads us to say “we need to fix this” 

F: the study with blind folding kids and putting them in wheelchairs doesn’t do it justice. They are just temporarily blind/disabled

A: disabled people go through their daily life with these disabilities. Claiming to know it all just because you know someone who is disabled also doesn’t do it justice. You can be an ally, but don’t go as far as saying you are disabled.

N: This appears to be a trend on social media.

A: Everyone has a different experience

N: I personally don’t associate with disability but I do have invisible disability. People would say “that’s so OCD of you” which is wrong.

L: they start using it as an adjective. Like “gay” as a negative adjective, and “autistic.” 

A: In my school they used “autistic” for stupid.

F: my mother opened my eyes to autism with a student she had who was on the spectrum and ended up being the smartest kid in the class. Why is it used to call others “stupid” when they tend to be smarter than most?

A: When people base your personality on whether or not your disability is valid or not

N: Like “oh this autistic person does this, how come you don’t?” Everyone is different, that’s why there’s a spectrum

A: People would ask me to diagnose them for autism because I was, but I’m not a doctor. I know me, everyone is different. Just because you have these quirks, doesn’t mean you have it. 

To Kill a Mockingbird

F: Killing a mockingbird is a sin because it gives you a song, killing a “cripple” is a sin because they have a lesson to teach us, that connected well for me

A: I don’t know about that, a con would be that disabled people will have a lesson to teach you, but people won’t learn the lesson until something bad happens to them

H: People look at disabled people as pitiful and people w/o disability tend to validate their life through the disabled

N: You can see this in fiction too, they never show the black disabled person to be the main character. 

A: Subconscious or not, people think they don’t have much of a life to live

H: They’re the subplot to help the main realize something about life

A: At some point they become “cured” or overcome it (like “As Good As it Gets”) in which disabled people need to be cured in order to live.

Breakout Group 1 Section 2 3/2

Brianna, Arden, Nicholas, Daniella, Salem

Tobin-Siebers, Theory in Disability

  • Nick, Foucault on the docile body, what does this mean? p 175
    • Basically the restructuring of the solider is eugenic sentiment, that people can be removed or corrected from the mass population – Arden 
    • P 174, pp 2 “the human subject has no body…dependent on its order”
      • Objects are defined by the language used around them, disability is made such by the language we use about the body 
      • Not all “impairments” are disabilities, some are just pain or cumbersome, but arent cause for people to be “othered”

H. Lee, TKAM

  • Salem- Perpetuating racism cannot be something that’s disabling because that mindset doesn’t have any negative pushback from the white majority
  • Brianna- if you step outside of the norm, it’s separating you from the majority, even if its the right thing to do 
  • Scout is being influenced by ? townspeople and also Calpurnia