Zachary Welsh’s Thoughts/Questions on “Misfit” by Tito Rajarshi Mukhopadhyay

Okay so the reading that stood out to me the most this week was actually An Unkindness of Ghosts, but I wanted to write about Tito Rajarshi Mukhopadhyay’s “Misfit” in part because I found it to not only be very intriguing, but also because I found myself struggling to understand what it was saying. Now this of course is not an insult to the author, but rather an admission that I myself am not the best when it comes to decoding the meaning of poetry. That being said, I’d like to offer up what I think the poem is saying. The poem opens with lines essentially stating how the Earth revolves round and round, and from it stars recede, night and day are formed, and nothing goes wrong. However, Mukhopadhyay immediately follows this up with a ferocious contradiction in which he says that when he himself spins round and round, men and women stare and him and they label him a misfit. I believe Mukhopadhyay is using this stark contrast as a way to provide some type of commentary on Autism and how it is perceived by our society. Maybe he is saying that when the world turns round and round, no one bats an eye, but when he turns round and round, he’s suddenly labeled as an outcast? I may be reaching but it’s the best I was able to come up with. This then brings me to the last two stanzas of the poem. Mukhopadhyay turns into the wind after being called a misfit, but I am struggling to understand the significance of it or what it means. The final stanza of the poem leads me to believe that I am at least heading in the right direction, but I can’t say I know for sure.

If anyone is able to clarify the meaning of the poem for me or offer up their interpretation of it, I would love to hear it and I would greatly appreciate it. Thank you.

Eliana’s Thoughts on “Neurotypical and Autistic Perspectives About the Autism Spectrum” and Autism Charities

This entire piece stood out to me, originally from the written point of view from someone on the spectrum and then furthermore to the points made within the paper. What really struck me though was in the beginning where Ne’eman begins the dueling narratives, the first one by Portia Iverson. She writes in her book Strange Son, “It was his mind they came for. They came to steal his mind. Before anyone could give it a name, even before I knew what it was, I knew it was in our house. I can’t say exactly how I knew. Except that I could feel it. Not that I wanted to. Believe me. They were very, very dark things. And there was no way to get rid of them. Sometimes I could hear them, late at night, when the house was very quiet; a creaking sound, an inexplicable hiss, a miniscule pop, a whistle out of nowhere…Night after night I sat beside his crib. I knew he was slipping away from us, away from our world…And then one day it happened. He was gone.” First off even though it wasn’t a direct reading for the course, this has hands down one of the most rage invoking pieces I’ve read this semester. There’s a lot to deconstruct, especially regarding negative connotations toward autism. First with the book itself being titled Strange Son, it already allows for the stereotypes to be applied to autism. Within the quote, who is they? Iverson writes as if her son was not born with autism, rather that some ghost or alien came into the house and possessed him. Referring to “they came to steal his mind”, it furthermore contributes to the incorrect generalization that autism means intellectually dumb or lacking. No one stole your son’s mind, and there’s nothing wrong with him. Additionally her overestimation of being able to ‘feel’ something was ‘wrong’ with her child? The entire paragraph sickened me. To assume that some sort of evil being took over your son or that autism ‘stole’ who your son is just completely removes any agency for an individual with autism and dehumanizes them. Quite frankly there was not one part in this excerpt that didn’t make me angry.

When quoted in Ne’eman’s paper, she refers to Portia Iverson as a parent and founder of Cure Autism Now. Those words alone tell us what we already need to know; that Iverson and others with her same view simply discriminate against individuals on the spectrum and see autism as a sickly disease. I decided to look the organization up and although there’s not much on it, I found a link discussing the differences between anti autism and autism accepting charities and organizations, which I found to be an interesting and important read. https://intheloopaboutneurodiversity.wordpress.com/2019/11/28/good-autistic-advocacy-organizations-vs-bad-autism-charities/

This article goes deeper into the means and organizations of autism groups, and separates ones that may seem charitable, but actually do more harm than good in the autistic community. Additionally, the diction used in the titles of the organizations can often be a strong teller for their inclusion and celebration of neurodiversity or lack thereof. For example the controversy of organizations like Autism Speaks which claim to be inclusive, yet the money raised is donated to science to find a curre, which furthermore contributes to a negative connotation on autism to be seen as a disease.

Zachary Welsh’s Thoughts on Cultural Commentary: Communicate with Me and “Alaska” by Savarese

For today’s readings, I was actually really interested in and inspired by our readings by Savarese and so I really wanted to not only do my write-up on his works but also just share some of my general thoughts on them and how they relate to class.

One of the first readings we did for today by Savarese was Cultural Commentary: Communicate With Me. Here, Savarese describes to readers his experience of living with autism and how his social and. school life were influenced by it. Savarese opens his piece by explaining to readers that during his school years, no one. really talked to him because they didn’t know how to, not only shedding light of societies’ lack of inclusion, but also touching base on the. societal divide between able bodied people (or The Frees as Savarese refers to them) and disabled individuals. Savarese also takes the time to directly address some of the questions others have been afraid to ask him, as well as giving tips on how The Frees are able to help. While of course providing said helpful ideas to the readers, perhaps the biggest tip Savarese gives is when he says to “Look at and talk to me, not to the facilitator.” With this tip serving as a reminder to readers and his schoolmates that he is a person just like any of us and when being addressed, the speaker should look at no one other than him.

With “Alaska”, readers are actually given the opportunity to experience Savarese’s work firsthand. The poem, while short, manages to brilliantly portray the feeling of isolation felt by Savarese as well as touch on facilitated communication. The said message of isolation is particularly felt in the line “great icebergs feel the cries of hurt / just. like they’re trying really, really to be free.” It can also be seen when Savarese says “forever then they have to let go / your hand trying to go.” In terms of the facilitated communication aspect, the author points out how Savarese uses the tree as a stand in for himself and his speaker, stating that the leaves (Savarese) “yearn for freedom” and the branches (his facilitated speaker) “live forever.”

I would love to hear your thoughts on the works mentioned above or even on the other things we read for today so feel free to drop some comments below!

Maddie’s Major Project: A poem and A Painting

As we have talked about frequently in this course, the discussion surrounding disability is frequently led and had be those who do not have a disability. Simi Linton in her paper, “Reassigning Meaning” discusses how the disabled community is making moves to reclaim the topic of disability by replacing word that were previously seen as derogative or “inappropriate” to take back the discussion of disability. I chose to create a piece that discusses the presence of disabled voice in disabled literature, and how the nondisabled community seeks to maintain control of a group they are not involved with.
The poem, written in prisoner’s constraint style, is mean to signify the intentions of the disabled, speaking out against the society that places them in a box that they have made, giving them a role to play that they did not get to choose. In a way, this poem is also a response to Jillian Weise’s “Nondisabled Demands,” combating the role that the nondisabled are playing in that poem with the voice of the disabled. The format of the poem, however, indicates that the place the disabled are being pushed into is still heavily active, despite the voices from the disabled to seek their own voice and name themselves.
To speak more specifically about the words in the poem, and the analysis of that piece itself, there is a high number of uniting pronouns like “we” and “us” while the “misnomers” are separate from the group speaking. While misnomers itself typically isn’t used to discuss people, it is also meant to symbolized terms that the nondisabled community attempts to give the disabled community in order to be “politically correct,” but, as the poem suggests, the disabled community is seeking to rise above that and wash that thinking clean. As we see by the large number of disabled authors we have read in this class, they seek to break away from the appraisal of the normal, the negative stereotyping, and tiptoeing done by the nondisabled. The presence of the poem at all is also meant to signify this same voice, as I am a student with a disability constructing this response and representing with what has resonated with me throughout this course.
I also hoped to portray commentary from Oscar Wilde’s “The Birthday of Infanta,” and Jillian Weise’s “The Old Questions,” discussing the fascination the non-disabled have with the disabled community and the need to place them on a stage for being different. The poem and its white space stand out, clearly the focal point of the piece, but all lowercase writing places it as something that isn’t attempting to jump out, but it’s rather been exposed by its placement.
The painting that contains this poem is meant to be a continuation of this theme. The straight lines that created the poem are meant to represent how society desires to place everything in an easy-to-define box, but the mixing of colors dictates that the intersectionality of society makes those boxes impossible to separate. By placing the poem in its own solid box of white, it also demonstrates how society, specifically the nondisabled community that chooses to write about characters with disabilities, views the stereotypes of the disabled as something “other” and what can only be held by those in that community.



we are visionaries

misnomers misname

us as semi-conscious

masses

accuse us

smear our names

in awe we’ve risen

we recover our names

we move in

remove our “ruin”

we rain

we rinse

we rise

Lily Mae’s Response to Feminism in Disability Studies

Feminist and disability studies will often go hand in hand when discussing intersectionality and often the lack of representation that is accurately given to both feminism and disability either connected or on their own. Rosemarie Garland-Thomson’s piece, Integrating Disability, Transforming Feminist Theory gives the reader background information on the topics of feminism and disability studies including the past and present practices dedicated to the two theories. Sheila Black’s piece, What You Mourn is a powerful poem about how women with disabilities are often seen and looked down upon based on certain stereotypes and expectations of women that are far from current feminist ideals and practices. Arguments regarding theories in feminist disability, the current systems of ability vs. disability as well as the representation of both theories, can be formed in response to the need of equality and integration that is still lacking within current society as well as strives still needed to be made in order to better reach the intersectionality of both topics. 

Garland-Thomson introduces the idea of feminist disability theory as a way of thinking that encompasses the practices of feminism through the lens of disability where intersectionality can often be found. When understanding the teachings of both feminism and disability studies one must open their eyes to the larger picture that encompasses both the cultural and personal aspects of individuals rather than focusing on just one piece of a person whether feminism or disability theories are present. “By considering the ability/disability system, feminist disability theory goes beyond explicit disability topics such as illness, health, beauty, genetics, eugenics, aging, reproductive technologies, prosthetics, and access issues. Feminist disability theory address such broad feminist concerns as the unity of the category ‘woman’,…” (Garland-Thomson 258), while many topics may fall under the umbrella of disability, 

being able to connect the feminist theory into said topics is what makes the theory so vital in understanding and representing women, particularly women who have disabilities. While this wave of feminism is indeed reaching more of the public through media and the discussions being had towards feminist ideals, it is still evident that work must still be made in relation to the gender based biases that are still being taught and believed by current and past generations. In Black’s poem, the stereotypes of women in relation to their wedding day is tied to the disability where walking is difficult and the thought that this disability would certainly interrupt the “perfect” wedding; “The year they straightened my legs, the young doctor said, meaning to be kind, Now you will walk straight on your wedding day, but what he could not imagine is how even on my wedding day I would arch back and wonder about that body I had before I was changed,…” (Black lines 1-7). The expectations placed on women for generations is exactly what feminism theories have begun trying to shine light upon as well as how damaging these stereotypes can become on women who often will not fit perfectly into such expectations.  The same can be said for those with disabilities where the stereotypes and expectations should simply be eradicated due to the loss of individuality that is caused when such cookie-cutter mentalities are the only ones being practiced. 

The topic of disability is often one that is found to be difficult and awkward for some to talk about but, nevertheless it is still a topic that requires much discussion in order for the equality needed to be found and put into motion. Over the past several decades the field of disability theory and study has developed into a nation conversation while the inequality is unfortunately still in practice. Those with disabilities are often looked down upon or even pitied while seen as “less than” individuals who are “normal”. Whether it be mental or physical disabilities that one has this should be no excuse why they should not receive the same opportunities and respect that their able-bodied peers are receiving. Disability is often a term that is used to describe a number of different ailments rather than focusing on the individual and more so on the disability itself, “Moreover, disability is a broad term within which cluster ideological categories as varied as sick, deformed, abnormal, crazy, ugly old, feebleminded, maimed, afflicted, mad, or debilitated- all of which disadvantage people by devaluing bodies that do not conform to cultural standards” (Garland-Thomson 260). This quote outlines the exact themes of Black’s piece of the crooked legs of the speaker being seen as an obstacle that must be overcome in order to better conform to the image society has in their minds of what a bride should look like on her wedding day; while also playing into the ideas of feminist theory that stem back to the beginning of marriage where brides are placed in a very specific role. When these roles and expectations are not met these individuals are seen as unusual and “upsetting” when individuality is tossed to the side and forgotten because they are now seen as an object that should be ridiculed or pitied for not fitting the predetermined image that is expected. The ability and disability system within this current day and age is still considered so problematic because individuals with disabilities are given the umbrella term of “disabled” and thus treated in a certain manner which is not conducive to encouraging independence and equal treatment of those given this label. 

Representation in both the feminist and disability realms has been something that people have been fighting for spanning over generations. While representation can be be a difficult topic for argumentation, due to the fact that representation should be unique and individualized, the broad generalizations of certain groups of people can be more detrimental than no representation at all. When overgeneralization are placed on groups of people it can be difficult to view these individuals in any other light creating a negative environment for those with disabilities and those with feminist ideals in particular. Garland-Thomson breaks down several of the common stereotypes in her writing and how intersectionality can be harmful when not used correctly, “Female, disabled, and dark bodies are supposed to be dependent, incomplete, vulnerable, and incompetent bodies. Femininity and race are the performance of disability. Women and the disabled are portrayed as helpless, dependent, weak, vulnerable, and incapable bodies” (Garland-Thomson 261). Representation, when accurate, is difficult to come by in all meanings but especially representation for those who have been so stereotyped and overgeneralized it is difficult to remove those labels from someone standing directly in front of us. While it is true that the individualized aspect of representation can be difficult because everyone has their own wants and their preferred identification, the answer is not going to be found in throwing around umbrella terms. In Black’s poem, she speaks to the notion of labeling and the language associated with those with disabilities calling to attention the wide variety of terms that can be used when talking about disabilities. Individuals with disabilities will of course have their own preferred language in regards to how they would like to be identified, “Crippled they called us when I was young later the word disabled and then differently abled, but those were all names given by outsiders, none of who could imagine that the crooked body they spoke of, the body which made walking difficult and running practically impossible,…” (Black lines 16-22).  Representation and language are often closely related when talking about feminist and disability theory as it has changed greatly over the years while at the same time being problematic still for those who the ones being labeled. 

Discussing feminist theory as well as disability studies can at times seem to be daunting and can feel awkward for some with the fear that the wrong phrase or misguided interpretations may be use but these are not things that should be used as excuses to completely ignore these topics. Being an active questioner to the systems in place is what makes a more rounded individual as well as a better informed ally to those around us who are faced with the battle everyday of negative stereotypes and must fight the overgeneralization pointed towards subsets of the population. Within the disability community the act of overgeneralization and the use of umbrella labeling can be incredibly damaging when looking at individual cases where those with disabilities are often pitied or looked down upon simply due to the fact that they have some sort of disability. When a topic is found to be difficult to discuss it is often the case that it is difficult because it forces individuals to take a look inside themselves and their fear of either those who are different from themselves or because they believe that they must treat those different from themselves in a unique or unusual way. Toxic ways of thinking in regards to feminism or disability is long overdue for an upgrade where treating people differently just because they are “different” from our own selves is no longer the appropriate way to think. Remaining open minded and questioning the current systems in place are the only true ways that change will be able to occur where the hope is that one day people will not be treated so differently just because they are their own unique versions of themselves. 

Breakout Room Discussion 4/15

Bryce, Alaina, Lily, Faith, Nathalie

Focusing on Ashkenazy

Alania- I did enjoy the beginning where she was talking about how her skin color allowed her to blend into different cultures which is not something that a lot of people are able to do.

Bryce- Yeah, she’s multi-racial so she has many features that allows her to blend in wherever she goes. Sor of being how she mentioned that that is when she feels the most accepted or welcomed into a group. She can just walk in anywhere and people would assume that that is where she is supposed to be. On the flipside of that being autistic there is a bit of a barrier for her. There’s a sort of dichogamy between the two

Alania- With autism and other disabilities you are immediately others but with being multicultural she is both and insider and an outsider

Bryce- I thought that the part where she was talking about the microaggressions where she mentioned – people would look at her and say why are you doing that and that makes it difficult but not really which is sort of pervasive or it spans into her disability. When people say “oh I have this” they use that and all their preconceived notions about it and say this is how you’re supposed to be this

Faith- Yeah, I really liked that part. I hate stereotypes that people may have toward others. I dislike that so much and it definitely doesn’t help that the media 

It gets me confused when people claim to have something, and they get it from just one trait from the disorder

Alania- It’s like people take the simplest things from stereotypes to feel validated.

Bryce- It almost waters down peoples’ actually lived experiences. The people who actually have it aren’t being taken seriously since its lost its importance.

Faith- Yeah, I like that phrase since it represents the struggle-

Alania- One of the things that stood out to me is that people with autism and who are also people of color have to follow the strict roles that society has set out for them

Bryce- Yeah like in those communities having mental disabilities can be a source of shame for the person and for their family – I think she talked about how having to act a certain way and if your autistic and you’re not picking up on norms than you’re expected to pick up on the norms others pose you’re considered strange because you’re not understanding what people expect you to know

Alania- A lot of what gets me is that people who seek a diagnosis is not believed because they do not match the stereotypes – male dominated autism

Scribe: Nathalie L

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